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Genetics Lesson Template
Conditional Remix & Share Permitted
CC BY-SA
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This template supports the Genetics Learning Challenge Winners in designing and authoring their proposed lesson ideas for how they are reimagining the way we teach and study genetics.

Subject:
Arts and Humanities
English Language Arts
Mathematics
Social Science
Material Type:
Lesson Plan
Date Added:
04/27/2015
e-CohortE: A French solution to genetic data ownership
Unrestricted Use
CC BY
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This resource is a video abstract of a research paper created by Research Square on behalf of its authors. It provides a synopsis that's easy to understand, and can be used to introduce the topics it covers to students, researchers, and the general public. The video's transcript is also provided in full, with a portion provided below for preview:

"Genetic testing companies hold data for tens of millions of consumers who have paid, online, for genetic information, without consulting a doctor. This information encodes more than just ancestry; it also captures aspects of wellbeing as well as traits or predispositions for which test quality is often poor. These private companies are strictly prohibited in France. But that hasn’t stopped French research teams from working with them, or French people from paying for illegal tests over the Internet. So how can France keep control over its own genetic data? Our solution is e-CohortE. Designed to achieve the same ends sought by genetic testing companies, but legally and more effectively, e-CohortEs would correspond to a specific and legal French research protocol of RIPH. RIPH sponsors currently address only a few questions on a single topic and then terminate a cohort..."

The rest of the transcript, along with a link to the research itself, is available on the resource itself.

Subject:
Genetics
Life Science
Material Type:
Diagram/Illustration
Reading
Provider:
Research Square
Provider Set:
Video Bytes
Date Added:
12/23/2019